Close Modal

Liam, 4, with his dad

Your advice is valued! It can help the community better support those living with LGS each day. Was there something you wish you had known earlier about LGS? Have advice on how to support siblings? Know a fun activity that other families might enjoy? Sharing your experiences today can help support a family like yours tomorrow.

Please provide your information below.
All fields with * are required.

Submission Guidelines

  • UCB has the right to edit your content
  • By submitting your content, you waive all rights to approve the finished product
  • If your content is selected, your first name and last initial will appear with your content
  • Content relating to treatment or medical advice will not be included
  • UCB has the right to feature or not feature submitted content

I have read and agree to the Terms of Use and Privacy Policy.