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You should continue to this site only if you are a US resident.
ContinueHow it was for me to advocate for my daughter was kind of just mama bear taking over. Nobody else is her voice. Nobody knows her like I do.
Starting the Conversation With Your Doctor
It's important to build a care team that is personalized to your loved one's needs, and a great place to start is by talking to your primary care doctor. They can guide you through the process of finding the right providers and recommend specialists in their network. They can also help to make sure your loved one is making enough progress on their current treatment plan.
Links for Resources and Support
The LGS Foundation has more information and support for the process of building a care team.
Discover LGS Foundation resources
If you are looking for expert healthcare providers near you, these resources may help: