Your Family and Lennox-Gastaut Syndrome (LGS)

When a family member has LGS, everyone is affected. Each of you will experience life's joys, but also the challenges that may come up. The caregivers in our community offer words of wisdom: take it one day at a time, and remember that you can and will get through this.

Liam, 4, with his family

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Liam, 4, with his family

Allison, 21, with her dad

The Impact of LGS on Families

It's not unusual for family members to have to make certain accommodations when a loved one has LGS. That may include taking time off from work or spending less time with friends and family. By learning about the challenges others have experienced, you may feel better prepared for whatever daily life brings.

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from caregivers

Allison, 21, with her dad

Aushay, 13, with his mom

Connect With Families Like Yours

It’s important to remember you aren’t alone in this journey; other families are going through similar struggles. The LGS Foundation is an organization run by LGS families who understand this dynamic. The foundation provides support, connections, and information. They can serve as a hopeful path forward on your journey with LGS.

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Aushay, 13, with his mom

Looking for support?

The LGS Foundation has many resources to get you connected with thousands of others who know what it’s like to have a loved one living with LGS.

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