Join the Shine Forward With LGS Community

Families with a loved one diagnosed with Lennox-Gastaut syndrome (LGS) have to be strong, but everyone can benefit from support sometimes.

Allison, 21, at home

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Allison, 21, at home

Liam, 4, with his dad

Sign Up for Shine Forward With LGS

Sign up for resources, including our C.A.R.E. (Caring for Adults with Rare Epilepsy) Binder, to navigate the journey from pediatric to adult care. It includes:

Step-by-step checklists to prepare for long-term care
Video messages with advice from healthcare professionals and families of those with rare epilepsy

Once you sign up, you can immediately download this tool and start creating a plan with your family.

Download the Interactive C.A.R.E. Binder

Please provide your information below.
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First name

Last name

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Which of the following best describes you?

I am caring for a child or adult with LGS

I am a family member or friend of a child or adult with LGS

I am a healthcare professional seeking information on LGS