Supporting Siblings

The impact of Lennox-Gastaut syndrome (LGS) can be especially hard for brothers and sisters of diagnosed children. To help make sure that they're also understood and supported, we've provided some resources especially for siblings.

Aushay, 13, with his family

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Aushay, 13, with his family

Liam, 4, with his brother

Your Relationship With Your Other Children

Having a loved one with LGS can affect your relationship with your other children. Engaging in family activities and alone time with your children without LGS can help them feel better supported, which can ultimately help strengthen your relationship.

Liam, 4, with his brother


LGS Also Impacts Siblings

People who have a sibling with LGS learn the importance of being patient and compassionate with others at an early age. They often show a great amount of strength on the outside but can at times be struggling on the inside. A study showed that they also often experience high levels of stress, anxious feelings, and fear. Some common challenges siblings face during their day-to-day lives include:

Feeling Unhappy

Up to 62% of siblings reported feelings of unhappiness


As much as 58% of siblings showed possible anxiety symptoms


Many of those surveyed, including 79% of siblings aged 9-12, expressed fear that their sibling may pass away

The Siblings Voices Study was created to measure the emotional impact of growing up with a sibling with certain types of epilepsy like LGS.

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Keep Siblings in the Loop

The experience of having a sibling with LGS can be difficult at times. As a parent, it’s important to talk about it together and find ways to help them to understand and cope with the situation. Open communication is one way to make sure everyone feels supported. It’s helpful to recognize the effect that growing up with a sibling with LGS may have on them. Those who are kept aware of what is happening with their loved one with LGS have been shown to be more aware of their feelings and happier.

Understanding LGS can help lower depression and anxiety

Up to 76% of siblings who understood the basics of epilepsy or who had helped during a seizure reported being in better moods.

Knowledge of their sibling's condition can bring comfort

Up to 86% of those who were informed about the status of their sibling's condition reported feeling more comfortable talking about it with other people.


When your child with LGS has a seizure, it’s important to know what exactly makes their brothers and sisters most comfortable. Some might want to get involved and help you, while others might want to distract themselves by being in a different room. Talking together and creating a plan in advance rather than when a seizure emergency is actually happening may help them feel better prepared.

Create Your Own Seizure Action Plan Today