LGS Family Stories

Being a caregiver to a loved one with Lennox-Gastaut syndrome (LGS) can be challenging, but it's important to remember that you are not alone. There are other families and caregivers out there just like you!

Addison, 4, with her family

Alison seated with her parents on a couch

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Addison, 4, with her family

Discover More Families Just Like Yours Living With LGS

COREY + CARMEN

Meet Corey, living with LGS, and his mom Carmen. Carmen talks about being Corey's primary caregiver, and the activities they do together to ensure Corey remains independent.

KURT, KASSIE, + ADDISON

Meet Kurt, Kassie, and Addison. Kurt and Kassie are the parents and primary caregivers to Addison, living with LGS. They discuss taking care of Addison and what it means to their family to be part of the LGS community.

KLOHE + JORDAN

Meet Klohe, living with LGS, and her mom and primary caregiver, Jordan. Jordan discusses what life is like with Klohe before and after starting treatment, and how Klohe has changed over the years.

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